The story of how my 5-year-old daughter and I built a robotic exoskeleton for her paralyzed arm. After learning there were no treatments we could afford, and only a 2% chance of recovery, we decided to leverage Open Social Innovation to build our own solution. A year later, leveraging the collective intelligence of experts around the world we built an exoskeleton, 100X cheaper, 10X lighter, and one that enabled her motor neurons to repair themselves! Today she can move, unassisted and has recovered 60% of her strength! This is our story:
We are off to Paris to prepare for the launch of the Learning Planet assembly together with UNESCO and the CRI.
There are more than 200 million students in higher education. Most students feel disengaged from the learning process but are highly concerned about world’s biggest problems and want to act.
This is the time to involve everyone in developing sustainable solutions. This is the time for building a learning planet.
Want to learn more: https://www.learning-planet.org/
14th-15th April 2018
Join us at the Geneva HACKAHEALTH event where various differently-abled people will come together to develop assistive devices, then publish the work as open source so that others can do the same.
We will continue on the journey of Chiara, Lorelei, Eric and Yariv as they hack their own health
If you are a Maker, Designer, Developer or Engineer interested in learning new skills, developing some cutting-edge solutions or just having fun with like-minded hackers, join us.
As we progress with ramping up the Open Social Innovation project we travel around the world gathering support and collaborators. From the west coast of the US where we visited friends at Google and X to the far-east where we meet with the most innovative organizations doing good.
2018 is here, and we are excited to progress!
When life happens
My work on Dev4X was put at a lower priority for a few months, , here is why:
My daughter, Lorelei, was diagnosed with Acute Flaccid Myelitis a rare polio-like syndrome and lost the use of her arm. Traditional treatments would have given her about a 5% chance at recovery, and state of the art treatments were too costly. Without any experience, we decided to tackle this challenge by setting up an open project and reaching out to experts for help.
We have now built a robotic assistive arm that is helping her move and which has increased her chances of rehabilitation. Over the last several weeks she has now slowly started to regain the use of her arm and is able to move!
Here is a video about our story:
Want to build your own robotic assistive arm?
Here are the instructions: www.ourkidscandoanything.com
As you may have read in our previous post, Mirum wanted to do something impactful. So they asked their clients to vote for their favorite early-stage charity, promising to put their Mirum24 maker teams into action to help the chosen charity reach their goals. They chose our project and this is a post about selecting the finalists in this #Mirum24 project.
This past holiday season, Mirum ran a Holiday Campaign and invited their clients to vote for an inspiring nonprofit. The purpose: to put their Mirum24 hacker teams to work solving a difficult global challenge. 15 teams came together and generated some amazing ideas. Read more here.
This is the application I put into the Shuttleworth foundation to join their fellowship program. It's part three of 'the world as I see it' blog series.
The #Mirum24 project is progressing and the makers are hard at work on the project, so let’s take a look at what’s happening.
Inspired by Minecraft and Loombands as
A quick post about some lessons we have learnt and some unexpected benefits we came to realize.
Phase two field tests are underway, this is an introduction to what we are doing.
In part one, I spoke about my concerns regarding sending my children to school and why they are unable to adequately prepare our children for the future. I also shared a little about what I am doing about this issue. In part two I want to talk a little more about our approach and why it’s important to disrupt traditional education without disrupting actual learning.